Current News

All Posts

Why Mental Health is Important to Our Brand: Health=Health

with Guest Contributor Brittany Foster June 27, 2017 Every so often, I get told, “It must be so hard to have InvisiYouth focus on physical and mental health. They are completely different.” But that couldn’t be further from the truth! My response…health is health, regardless of it focusing on the mind, or the body. In […]

Tags:

ability , adaptive , adaptive sports , blog , charity , CHD , child , chronic illness , Chronic Regional Pain Syndrome , congential heart defect , CRPS , disability , EDS , entreprenuer , fashion , female founder , founder , girl boss , health , health advocacy , healthcare , high school , hospital , illness , invisible illness , lifestyle , lifestyle hacks , mental health , monthly , nonprofit , philanthropic , philanthropy , post traumatic stress disorder , PTSD , pulmonary hypertension , Reflex Sympathetic Dystrophy , RSD , spoonie , spoonie hacks , spoonie life , teen , teens , tips , trauma , university , young adults , youth

“That Looks So Cool, How Did You Come Up With That?” The Fashion Hacks and Tips For Those With Illness

May 30, 2017 Way before I got injured and before I ran my first fundraiser, my dream job was one of two options: a professional tennis player, or a fashion magazine editor. I loved the ability to describe myself in clothes, to layer and accentuate how I wanted to look and feel in a moment. […]

Tags:

ability , adaptive , adaptive sports , blog , charity , child , chronic illness , Chronic Regional Pain Syndrome , CRPS , disability , entreprenuer , fashion , female founder , founder , girl boss , health , health advocacy , healthcare , high school , hospital , illness , invisible illness , lifestyle , lifestyle hacks , mental health , monthly , nonprofit , philanthrophy , philanthropic , physical health , Reflex Sympathetic Dystrophy , RSD , spoonie , spoonie hacks , spoonie life , teen , teens , tips , university , warrior , ya , young adults , youth

Illness Isn't A Crutch: Why It's So Hard For Health People To Learn Illness Isn't An Excuse

April 28, 2017 “Why are you bailing again last minute?” “Are you sure you’re gonna come, or are you gonna flake last minute?” “What’s up? You’ve been MIA for days?” If you ask any teen or young adult with chronic illness, they can probably share hundreds or more quotes like this. Hundreds of times when […]

Tags:

advice , advocacy , AMPS , blog , charity , chronic illness , CRPS , EDS , female founder , founder , girl boss , health , health advocacy , healthcare , hospital , illness , invisible illness , lifestyle , lifestyle hacks , mental health , motivation , nonprofit , philanthrophy , physical health , rare disease , RSD , spoonie , spoonie life , teen , young adult

Spotlight Story Program: Katy's Story

Meet Katy Baker Since before she can remember, Katy has been part of the healthcare system dealing with a congenital heart defect called Scimitar Syndrome. But what has defined her medical life has not defined Katy’s personal life. She’s a university student, on a competitive trampoline team, and rare disease activist that’s using her voice […]

Tags:

advocacy , awareness , blog , British , charity , chronic illness , college , congential heart defect , education , England , gp , health , healthcare , high school , illness , invisible illness , nonprofit , pediatrics , philanthrophy , philanthropic , pulmonary , rare disease , Scitmitar Syndrome , spotlight , teen , trampoline , UK , university , ya , young adult

What's In My Bag: The "Boss Lady" Spoonie Edition

March 31, 2017 It’s often so hard to travel on a daily basis as a spoonie, let alone make sure that you have everything you need in order to adapt and function to your health struggles each and every day…Even harder, not to feel the need to carry a massive duffle bag everywhere you go! For […]

Tags:

adaptive , blog , charity , child , disability , EDS , Ehlers Danlos Syndrome , entreprenuer , family , founder , gp , health , healthcare , high school , hospital , illness , invisible illness , lifestyle , lifestyle hacks , monthly , nhs , nonprofit , operation , philanthrophy , purse , Reflex Sympathetic Dystrophy , RSD , selfcare , teens , tips , university , ya , young adults , youth

New Year, Same Health and Same Work: Finding the Always-Changing Balance of a Work Life and Illness Life

February 8, 2017 As everyone seems to be trying to stay true to their New Year Resolutions, some were daring and used a pen, others are like me and preferred to make sure their new hopes and goals could change with the ease of an eraser. Recently, I’ve been hearing from a lot of you wanting […]

Tags:

advice , ambidextrous , AMPS , blog , charity , CRPS , EDS , entreprenuer , founder , health , high school , hospital , how to , illness , invisible illness , lifestyle , monthly , nonprofit , Reflex Sympathetic Dystrophy , RSD , teens , tips , university , young adults , youth , YouTube

Spotlight Story Program: Brittany's Story

Meet Brittany Foster Her heart may have given Brittany Foster lots of medical struggles throughout her life, but she has one of the kindest and passionate hearts out there. Brittany has used her experiences through pediatrics into adult healthcare to give back, to inspire others to take control of their health journey and become their own […]

Tags:

advocacy , cardiac , cardiology , charity , health , healthcare , hospital , hypertension , illness , invisible illness , nonprofit , pacemaker , teens , therapy , young adults

Spotlight Story Program: Rachel's Story

Meet Rachel Necky As a rockstar athlete, teen Rachel Necky was ruling her life as an ice hockey player, but one injury would change her life direction. Dealing with the neurovascular condition called CRPS, Complex Regional Pain Syndrome, Rachel had to dig deep, find even more strength, and use her dedicated athlete mentality to fight […]

Tags:

AMPS , athlete , charity , complex regional pain syndrome , CRPS , health , hospital , ice hockey , illness , invisible illness , nonprofit , pain , RSD , teens , young adults

Spotlight Story Program: Erin's Story

Meet Erin Raftery Since before Erin Raftery could even talk, she was dealing with problems in her health. From a battle with leukemia to cardiac conditions, Erin has had to adapt her lifestyle to her health, and that made Erin a stronger and more accomplished young adult than her wildest dreams. Yes, I spent a […]

Tags:

archive , blog , cancer , cardiac , cardiomypathy , charity , healthcare , hospitals , illness , invisible illness , leukemia , nonprofit , pediatric , relay for life , spotlight , story , teens , washington DC , young adults , youth

Spotlight Story Program: Emily's Story

Meet Emily Levy After years of mysterious illness symptoms and suffering, Emily Levy was finally given a diagnosis of neurological Lyme disease, but that did not stop Emily for achieving her dreams. Now as a successful boss lady and creator of the company Mighty-Well, Emily has decided to take her experience and give back to […]

Tags:

archive , blog , business owner , charity , college , feminist , hospital , illness , invisible illness , lyme , lyme disease , neurological , nonprofit , spotlight , story , teens , university , young adults , youth

Tags

#baltimoreblogger ability ableism accommodations accurate casting acting activism adapt adaptive adaptive accessories adaptive sports advertising advice advocacy allies allyship ambidextrous america american AMPS anniversary anxiety apple podcast archive art student ASOS asthma athlete australia australian blogger autoimmune autoimmune conditions award show awareness BBC beauty beauty brand beijing bereavement beyond type 1 BHA bladder pain syndrome blind blindness blog blogger blogging boccia boss boss girl boss lady bracelets brighton British british blogger British Heart Association Britsh bronchiolitis obliterans brunch brunch meeting business owner cafe meeting california canada cancer cane cardiac cardiology cardiomypathy casting celebrity ambassador celebrity dance competition cerebral palsy CF charitable sponsor charity charity event charity events charity meet up charity store CHD cheerfully live Chiari Chiari Malformation chicago child CHOP christmas chronic fatigue syndrome chronic illness chronic illness activism chronic illness advice chronic illness awareness chronic illness blogger chronic illness group chronic illness support chronic illnessc Chronic Regional Pain Syndrome chronic youth australia chrons chrons disease claire wineland clothing brand cochlear implants coffee coinfections college college students comorbidities complex regional pain syndrome confidence congential heart defect coronation street costochondritis COVID covid19 pandemic advice Coxsackie virus CP CP Teens crohns crohns disease CRPS Cures Act curved spine custom tees cystic fibrosis dancing dancing with the stars dark horse deaf deaf community deaf culture december december give back challenge Degrassi design student diabetes diagnosis diagnosis journey disability disability acting disability activism disability actors disability advice disability awarenes disability awareness disability model disability rights disability sports disability support disability tips disability tops disablity discount documentary donate donate life donate life america donate now donate today donating donation donations donor dorney lake double lung transplant DWTS east 15 acting school EDS education EFDS Ehlers Danlos Syndrome empower empowerment endometriosis England entreprenuer epilepsy Epstein Barr virus ESPN ESPN correspondent Essex ethical clothes ethical consumerism etsy etsy shop event events everything everything facebook family fashion fatigue feature female director female entreprenuers female founder feminist fibromyalgia film flare up FND founder founder's blog fowler's syndrome friends and family functional neurological disorder functional seizures funding fundraise fundraiser fundraiser event fundraising gbl all star gbl ambassador gbls genetic disorder genz girl boss girl boss blogger give back give back challenge give back grid givebackgrid giving tuesday global brand leaders global brand leaders program global charity gluten goal setting goals gp graphic designer hangout hangouts happiness hard of hearing hashimoto's disease health health advocacy healthcare healthcare advocacy healthcare advocate hearing aids hearing loss heath advocacy heathcare heds hidden disability high school hip replacement HMSA hoboken holidays hoodies hospital hospital advice hospitals how to hypermobility hypertension hypothyroidism ice hockey IgA immunodeficiency iheart radio ileocaecal crohns disease Illinois illness im 4 love immune system inclusive inclusive casting influencer instagram instagram live international interstitial cystitis invisibile illness invisible disability invisible illnes invisible illness invisible illness advice invisible illness awareness invisievents invisiyouth invisiyouth charity invisiyouth charity shop invisiyouth chat sessions invisiyouth global brand leaders itv IYC Brand Leader jdrf la las vegas leadership leadership program leukemia life advice life hacks lifestyle lifestyle hacks limb difference lip gloss lipstick liver disease liver failure liver transplant london los angeles love love your scar lung disease lung transplant lupus lupus awareness lupus awareness month lupus sle lyme lyme disease lyme disease uk makeup brand makeup line manchester marathon marfan marfan syndrome marketing maryland MCAS medical equipment meet ups meetups mental health mental health activism mental health awareness mental health blogger Midnight Sun mighty well millennial advice millennials miniseries model monthly monthly blog motivation motivational speaker motivator movie multi-city narcolepsy national donate life neurological neurological condition new jersey new year new york new york city new zealand news news archive news article nhs nice genes nomination nominee nonprofit nyc olympics operation organ donation organ donor organ transplant organization OUAS pacemaker pain pain management parliament partnership pediatric pediatrics perscriptions philanthropgy philanthrophic philanthrophy philanthropic philanthropy physical disability physical health physical therapy physio physiotherapy podcast podcast advice podcast hacks podcast tips podcasting post traumatic stress disorder postural orthostatic tachycardia syndrome POTS profound deafness programming promotion PTSD pulmonary pulmonary hypertension purse radio rare disease recycled clothes Reflex Sympathetic Dystrophy relationship relationship advice relay for life respiratory respiratory physiotherapy respiratory syncytial virus restrictive lung disease retinitis pigmentosa rider university role model RSD RSV Scitmitar Syndrome scoliosis scoliosis surgery scotland scottish scrunchies seizures selfcare setting goals severe gluten intolerance shop sick chick singing social media spinal cord injury sponsor sponsors sponsorship spoonie spoonie blogger spoonie hacks spoonie life sports spotify spotlight spotlight story spotlight story program story storytelling streetwear sts suffering the silence superhero series superhero tri support system supporters swimmer Switched at Birth t1d tachycardia Takayasu's Disease Takayasu’s tbi tee spoonies teen teen advice teens television The Fault in Our Stars The Fosters The Mix theatre therapy tips tourettes tourettes syndrome trampoline transplant transplant story transplant survivor transplant warrior Transverse Myelitis trauma traumatic brain injury travel triathlon triplec tv twitter type 1 diabetes UK umbilical hernia undiagnosed uni student United Kingdom united states university usa usher syndrome usher syndrome type 2 vascular Victoria Arlen Victoria's Victory Foundation video video podcast virtual program virtual programs virtual volunteers visual impairment volunteer volunteering volunteerings wales warrior washington DC ways to donate WEGO Health wego health awards wheelchair wheelchair user Wonder world vision australia writer xray ya yorkshire young adult young adults youth youth activism YouTube zebedee talent